A special needs parenting perspective

by Jen Lee Reeves on January 11, 2013 · 2 comments

in 2013, special needs

I feel it’s super important to share where my brain is right now… I think it’s in hyper-sensitive mode but it’s an important sensitivity.

I am a special needs advocate from the perspective of a parent. I can’t offer perspective from a person with special needs. So I think it’s incredibly important to listen and find people who are sharing their personal perspective of living life with special needs. I hope to empower Jordan to write and share her perspective. Maybe here on Born Just Right, maybe just on paper to share with the family, maybe as a class assignment or speaking opportunity.

Here are some limb difference spaces where you can learn from the perspective of an adult with a limb difference:
Don’t Hide It, Flaunt It – Meg Zucker
Living One Handed – Ryan Haack 
Stream of Caitlinness – Caitlin Pereiras
One Arm Girl

If you know of additional links, please let me know. The best thing I can do as a parent advocate is raise awareness and help connect people to others who may not have otherwise had a chance to meet in the special needs world. Fundraising for great causes is a great focus for me as well.

Speaking of raising awareness and fundraising, if you haven’t sent a tweet out as part of we-care.com’s #MillionDimes Twitter campaign, you have until Monday to help earn money for Camp No Limits ten cents a tweet at a time. (You can tweet up to five times to earn $.50 a day for camp.) The more people who tweet, the more money for camp! We’re on track to earn $1,000 if we keep tweeting! Here’s a sample for you:

Please tweet/RT for @CampNoLimits to get $.10/tweet as part of @wecare’s #MillionDimes campaign! (You can tweet 5x/day)

{ 2 comments… read them below or add one }

Allie January 17, 2013 at 9:09 am

I was just referred to this site after a friend heard my sister’s story and I was wondering if you’re looking for more adult perspectives on limb deficiency… My sister was born without her right arm due to amniotic band syndrome. Her “armie” as we called it as kids ends well above the elbow. She has never let her handicap hold her back from anything, nor has she ever expected special treatment because of it. She was a cheerleader and played basketball growing up, and went on to become a successful lawyer, married a great guy and is now raising a beautiful little boy. How she makes it work as a mom is so so immensely awesome and humbling. I’m sure she’d be happy to share her story or offer any advice. Let me know and I’ll connect you! And thank you for your amazing site. 🙂 I wish something like this had been around when my sister was growing up!

Jen Lee Reeves January 17, 2013 at 11:27 am

Hi Allie! Thanks so much for touching base. I’m going to send you an email.

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